2025 Annual Report
Nori's Fight has completed a year of significant growth, transforming a personal promise to honor Noriel into a global movement for MDA-5 Dermatomyositis and Interstitial Lung Disease (ILD) awareness. In its first year, the foundation successfully established critical research partnerships and launched programs aimed at improving early diagnosis and patient outcomes.
Vision
To help create a world where myositis conditions are detected early through increased awareness and advanced diagnostic tools, ensuring patients have access to innovative, effective treatments.
Mission
To empower patients and healthcare providers through targeted education and awareness programs, while accelerating breakthrough research in early detection and treatment across the myositis spectrum.
Key 2025 Milestones & Financial Stats
-
Fundraising Growth: The annual Drive for MDA-5 Golf Tournament raised $78,000, a 28% increase over the previous year.
-
Strategic Research Grants:
-
$30,000 to UCSF: Laying the groundwork for a dedicated Myositis clinic and a longitudinal research cohort.
-
$20,000 to UNC: Funding a retrospective study on diagnostic delays led by Dr. Astia Allenzara.
-
$10,000 to MCTC: Supporting the Myositis Clinical Trials Consortium's international research infrastructure.
-
-
Global Advocacy: Partnered with The Myositis Association and MIHRA to host the We Care for Rare Virtual Summit, reaching over 250 participants across 12 countries.
-
Financial Health: Ended the year with $156,265 in total revenue and $84,035 in total net assets.
-
Operational Efficiency: Maintained low administrative overhead at 6.1% of total expenses.