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NORI'S FIGHT

Shining a Light on Anti-MDA5 Dermatomyositis


Nori's Fight is dedicated to raising awareness about the rare autoimmune disease that took Nori from us too soon. Our mission is to promote early detection and advancements in treatments for Anti-MDA5 Dermatomyositis and Interstitial Lung Disease. With your support, we aim to raise awareness and fund vital research efforts.

MAKE A DIFFERENCE

Pledge now.

Thanks for supporting Nori's Fight!

Who is Noriel?

Nori lived by the motto, "If you're not living on the edge, you're taking up too much space." He embraced life fully, filling each moment with joy for those around him.

He excelled in every aspect of life: uplifting friends and family, pushing boundaries at work to prioritize innovation, and always making time for fun.

Golf was one of Nori's passions; he could often be found on the course, giving his friends a run for their money—or winning friendly bets, which he usually did.

 

His immense heart, infectious laugh, and radiant smile brightened every room he entered, leaving a lasting impact on everyone he met. The world is a little dimmer without his light.

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Understanding Anti-MDA5 Dermatomyositis
and 
Interstitial Lung Disease

Anti-MDA5 Dermatomyositis is a subtype of myositis, causing inflammation in the lungs and other areas. It often leads to rapidly progressive lung disease and currently has a challenging prognosis.

Symptoms can mimic pneumonia, and due to its rarity, diagnosis can be delayed. Our mission is to increase awareness, facilitate earlier detection, and support research into effective treatments, sparing other families from similar struggles

More Coming Soon

Future Events

Drive for MDA-5 Golf Tournament

 Nori's competitive spirit and love for golf make this tournament a fitting tribute and an excellent way to raise funds for our cause.

Annual Poker Tournament

Nori was always up for a challenge or a friendly wager, making this fundraiser a perfect homage to his spirited nature.

  • What is the difference between a pledge and a donation?
    A pledge is a promise to give a specified amount of money to a cause or organization at a later date. It's a commitment to make a donation in the future. Pledges can be one-time promises or recurring commitments over a set period. A donation is the actual transfer of money or other resources to a cause or organization. When you make a donation, you are immediately providing funds or resources. In summary: A pledge is a future commitment to give. A donation is the immediate giving of funds or resources.
  • How can I make a pledge?
    To make a pledge, please visit our "Pledge Form" above and fill out the required information. We will keep you updated on progress and be in touch once we are ready to accept donations.
  • Why is Nori’s Fight only accepting pledges instead of donations right now?
    We are currently in the process of obtaining our 501(c)(3) status, which typically takes about 6-8 weeks. In the meantime, we wanted to start raising awareness and engaging with our supporters. However, we decided to wait on collecting actual funds until we have all the necessary documentation in place. Additionally, we want to ensure that our donors can benefit from the tax-exempt status that comes with donating to a 501(c)(3) organization before we begin accepting actual contributions.
  • What is a 501(c)(3) status?
    A 501(c)(3) status refers to a designation by the Internal Revenue Service (IRS) in the United States that identifies an organization as a tax-exempt, nonprofit entity. Organizations with 501(c)(3) status are typically charitable, educational, religious, scientific, or literary in nature. Key points about 501(c)(3) status: Tax-Exempt: Organizations with this status do not have to pay federal income tax on donations received and other income related to their nonprofit purposes. Deductible Donations: Contributions made to 501(c)(3) organizations are generally tax-deductible for the donor, meaning individuals and businesses can deduct their donations from their taxable income. Purpose Restrictions: To qualify, the organization must be operated exclusively for exempt purposes as set forth in section 501(c)(3) of the IRS Code, and none of its earnings may inure to any private shareholder or individual. Compliance Requirements: These organizations must adhere to specific regulations, including restrictions on political and legislative activities. In summary: A 501(c)(3) status provides significant tax benefits and credibility, encouraging public support and compliance with charitable, educational, or other nonprofit purposes.
  • Will my donation be tax exempt?
    Yes, once Nori’s Fight 501c3 paperwork is complete, we will start accepting donations and donors will be provided with the appropriate tax exempt documents.
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