Shining a Light on Anti-MDA5 Dermatomyositis
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Nori's Fight is dedicated to raising awareness about the rare autoimmune disease that took Nori from us too soon. Our mission is to promote early detection and advancements in treatments for Anti-MDA5 Dermatomyositis and Interstitial Lung Disease. With your support, we aim to raise awareness and fund vital research efforts.
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Who is Noriel?
Nori lived by the motto, "If you're not living on the edge, you're taking up too much space." He embraced life fully, filling each moment with joy for those around him.
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He excelled in every aspect of life: uplifting friends and family, pushing boundaries at work to prioritize innovation, and always making time for fun.
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Golf was one of Nori's passions; he could often be found on the course, giving his friends a run for their money—or winning friendly bets, which he usually did.
His immense heart, infectious laugh, and radiant smile brightened every room he entered, leaving a lasting impact on everyone he met. The world is a little dimmer without his light.
Understanding Anti-MDA5 Dermatomyositis
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Interstitial Lung Disease
Anti-MDA5 Dermatomyositis is a subtype of myositis, causing inflammation in the lungs and other areas. It often leads to rapidly progressive lung disease and currently has a challenging prognosis.
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Symptoms can mimic pneumonia, and due to its rarity, diagnosis can be delayed. Our mission is to increase awareness, facilitate earlier detection, and support research into effective treatments, sparing other families from similar struggles.
More Coming Soon
Future Events
Drive for MDA-5 Golf Tournament
Nori's competitive spirit and love for golf make this tournament a fitting tribute and an excellent way to raise funds for our cause.
Annual Tournament
Nori was always up for a challenge or a friendly wager, making this fundraiser a perfect homage to his spirited nature.
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Is Nori’s Fight a 501(c)(3)?Yes, Nori’s Fight is a registered 501(c)(3) nonprofit organization. This means we operate exclusively for charitable and educational purposes, with our mission focused on funding research, education, and awareness for Myositis, a rare autoimmune disease that can lead to Interstitial Lung Disease. Our EIN is 99-4741547.
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What is a 501(c)(3) status?A 501(c)(3) status refers to a designation by the Internal Revenue Service (IRS) in the United States that identifies an organization as a tax-exempt, nonprofit entity. Organizations with 501(c)(3) status are typically charitable, educational, religious, scientific, or literary in nature. Key points about 501(c)(3) status: Tax-Exempt: Organizations with this status do not have to pay federal income tax on donations received and other income related to their nonprofit purposes. Deductible Donations: Contributions made to 501(c)(3) organizations are generally tax-deductible for the donor, meaning individuals and businesses can deduct their donations from their taxable income. Purpose Restrictions: To qualify, the organization must be operated exclusively for exempt purposes as set forth in section 501(c)(3) of the IRS Code, and none of its earnings may inure to any private shareholder or individual. Compliance Requirements: These organizations must adhere to specific regulations, including restrictions on political and legislative activities. In summary: A 501(c)(3) status provides significant tax benefits and credibility, encouraging public support and compliance with charitable, educational, or other nonprofit purposes.
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How can I make a donation?You can support Nori’s Fight by making a donation above through our website. Simply fill out the form on our home page or click the 'Donate Now' button in the header of our website and follow the secure steps to contribute. We accept various payment methods, including credit cards, GPay, and Apple Pay. We can also accept donations through Donor Advised Funds or by check if you prefer. Please contact us for instructions at info@norisfight.org if you prefer one of those options. Your generosity helps us fund vital research, education, and awareness initiatives.
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Will my donation be tax exempt?Yes, your donation to Nori’s Fight is tax-deductible to the extent allowed by law. As a registered 501(c)(3) nonprofit organization, we provide a donation receipt with our tax ID number for your records. Be sure to consult with a tax professional to determine how your contribution may benefit you when filing your taxes.
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What will be tax-exempt?Donations to Nori’s Fight are generally tax-deductible. However, if your donation involves receiving goods or services (such as event tickets or auction items), only the amount that exceeds the fair market value of what you received is tax-deductible. For example, if you win an auction item valued at $100 and donate $150, only $50 is tax-deductible. We’ll provide a receipt that outlines this information for your records. Be sure to consult a tax professional for specific guidance.