top of page

Nori’s Story: Shining a Light on Dermatomyositis

Dermatomyositis.com has created this platform as powerful reminder that patients and caregivers shouldn’t

have to face dermatomyositis alone.​

​

Dermatomyositis.com is a trusted resource dedicated to supporting patients, caregivers, and advocates impacted by dermatomyositis. The site raises awareness by sharing powerful stories, provides vital resources to help families navigate care and research, and builds a sense of community so no one feels alone in their journey.

​

By featuring Nori’s story, Dermatomyositis.com helps amplify the voices of rare disease patients and brings greater visibility to the challenges — and hope — within our community.

About Our Interview

Our President and co-founder, Julia Nickerson, recently shared her and Nori’s journey with Dermatomyositis.com — a site dedicated to raising awareness, sharing vital information, and building community around this rare and challenging disease.

Why This Matters

This feature is more than just a story — it’s a movement. By raising awareness, we’re helping patients and caregivers access resources, connect with others, and push forward in the fight against dermatomyositis.​

 

Awareness

Spreading knowledge about rare disease

Community

Connecting patients and families

Support

Empowering caregivers and loved ones

Support the Cause

Every action counts! Whether you donate, participate, or simply spread the word, you are helping to create a brighter future for those with rare diseases.

 

​​​For more information, contact us at info@norisfight.org.

Together, we can make a difference! 

5432 Geary Blvd Unit #528

San Francisco, CA 94121

  • Instagram
  • Facebook
  • LinkedIn

© 2025 Nori's Fight, Inc. 501(c)(3) organization, EIN: 99-4741547.​​​​

|

bottom of page